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Discrimination-fueled mistrust of hospice care


The current ANS featured article is titled “Mistrust Reported by US Mexicans With Cancer at End of Life and Hospice Enrollment” authored by Margaret L. Rising, PhD, JD, RN; Dena Hassouneh, PhD, RN, FAAN; Patricia Berry, PhD, CNP, GNP-BC, ACHPN, FPCN, FAAN; and Kristin Lutz, PhD, RN. The article is available to download at no cost while it is featured! Here is the abstract giving a summary of the outcome of the grounded theory approach used in this work:

Margaret L. Rising

Hospice research with Hispanics mostly focuses on cultural barriers. Mindful of social justice
and structural violence, we used critical grounded theory in a postcolonial theory framework
to develop a grounded theory of hospice decision making in US Mexicans with terminal cancer. Findings suggest that hospice avoidance is predicted by mistrust, rather than culture,
whereas hospice enrollers felt a sense of belonging. Cultural accommodation may do little
to mitigate hospice avoidance rooted in discrimination-fueled mistrust. Future research with
nondominant populations should employ research designs mitigating Eurocentric biases. Policy makers should consider concurrent therapy for nondominant populations with low trust
in the health care system (p. E14)

Rising, M. L., Hassouneh, D., Berry, P., & Lutz, K. (2021). Mistrust Reported by US Mexicans With Cancer at End of Life and Hospice Enrollment. ANS. Advances in Nursing Science, 44(1), E14–E31. https://doi.org/10.1097/ANS.0000000000000344
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