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Posts by Peggy L Chinn

Re-examining Marginalization


The first featured article for the latest issue of ANS is authored by Joanne M. Hall, PhD, RN, FAAN and Kelly Carlson, PhD, APRN-BC. The article addresses complex issues that perpetuate health disparities, and is titled “Marginalization: A Revisitation With Integration of Scholarship on Globalization, Intersectionality, Privilege, Microaggressions, and Implicit Biases.” The article is available to download at no cost while it is featured; I join the authors in inviting you to read it and return here to share your comments and ideas.  Here is a message from Dr. Hall about her work:

Why talk about marginalization? Marginalization refers to principles that can be transferred across contexts, yet we are learning that so many nursing problems, especially in the US, where healthcare is a pluralistic, patchwork

Joanne Hall

Joanne Hall

structure require attention to situation-specific factors, and situation-specific theories? The beginning of this thread of scholarship was the question, is there anything marginalized groups, or people in marginalizing situations have “in common?”  This not only included marginalization based on identity or group status, but on social processes, cultural expectations, environmental and socio-political factors. We agree with Chinn and Kramer that emancipatory knowledge is foundational to nursing science and practice.

There is an aspect of person that is potentially universal, a striving toward survival, thriving, and belongingness in such a way that supports diversity, equality, equity and justice. But this is not feasible for so many in the world at this time in history.

As a newly practicing RN, I was also, (in my spare time), an activist in the Catholic Worker Movement, and part of a group who opened a house of hospitality for women and children in Dubuque Iowa, my home town.  Eventually, we became a “discharge plan” and patients were sent from the local hospitals to “Catholic Worker House.”  The patients I cared for from noon to midnight in the psychic unit the night before might arrive in time for dinner the next evening and stay for two weeks.  This 6 years of my life was a great education about the highest-risk people in our communities.   We as a community combined providing food, clothing and shelter for those in immediate need with political action on larger justice issues.  At that time, liberation movements were growing in Latin America, and I became involved in discussions with various liberation and feminist theologians. In particular, I formed a partnership with my friend and mentor, now deceased, Manolo Barreno. Mano was a liberation theologian from Ecuador who had been thrown out by the Jesuits from a seminary in Rome for “associating with communists,” poor folks, who then not only took him in but supported his journey to the US,  to Iowa to finish his PhD at Aquinas Institute of Theology, which happened to be in Dubuque. Mano and I were fast friends, and became agitators in the group, pressing for justice not only in Latin America, and locally, but for structural changes in the Catholic Church itself. The movement by survivors of sexual abuse by ministers and priests (SNAP), was emergent.  Those who joined Mano and me pressed for women in the Catholic priesthood, and support for a local woman who taught at a Catholic school, and was fired specifically because she had a baby and was not married. We pressed for LGBT full recognition by the church.

My years in the Catholic Worker Movement eventually convinced me that this movement had a useful personalist philosophy, political analysis, an action orientation, especially focused on poverty, economic and anti-military issues, but that it would not take strong positions for women, African Americans, LGBTQ people, and in opposition to the emerging sexual abuse scandal, which eventually proved to be more expansive that anyone imagined at that time. (As I understand it, the movement has “come around” on these issues in recent years.)

I took a graduate course at Aquinas Institute in christology, the search for the historical Jesus. I realized the complex level of scholarship that had been done to determine hermeneutically, anthropologically, and historically who Jesus of Nazareth was.  I knew the power of writing that could influence sociopolitical and health outcomes.  I realized I was capable of taking a graduate class.

Fast forward, I decided that I might have more influence in solving the problems I became so familiar with as an activist, by contributing scholarship as a nurse leader as a nurse scientist. Working with Afaf Meleis and Patricia Stevens, we began in 1994 to answer that initial question, “Is there any thing, process, or set of elements, that is common in the experience of being marginalized?  Rather than an “identity categories” approach, the scholarship on marginalization focuses on the fact that anyone can be targeted, or suddenly find themselves in the high-risk situation of being marginalized.  This more contextual approach is consistent with an intersectionality framework, in which we realize that a person is potentially subject to marginalization based on a number of factors, and that, for a Black lesbian woman, for example, interpersonal slights may set off a whole energy-consuming and stressful problem-solving process for the woman, who is in a quandary about what the basis for the insult is.  “Is this based on race?  Is this because I am a woman and he is a man?  Do they know I am gay?  Is he just pissed off about something else? etc….  This is far less often a subjective experience of White, privileged males.  In fact research shows that those who are privileged, including White health care providers, have implicit biases, prejudices leading to racial microaggressions that White people are usually not aware they are perpetrating, and that has harmful effects on the target person.  We discuss much of this in this article, which is an update on recent scholarship relevant to marginalization.

Why should we as nurses be concerned with understanding political dynamics of the world we live in?  We hope this perspective helps nurses to be able to see the striving of human beings toward fullness of their lives, without amputating their culture, their understanding of their gender identity, their sexual orientation, their partner, their color, their religion, their abilities, and /or their substance use/abuse status. The emancipatory nature of human beings is as real as is their psychological, social, and physiological developmental processes. It is striving toward autonomy, self-determination, group-self-determination and respect as equals among other groups.  Therefore as nurses, we should assess where people are in terms of their own liberation.  This starts with safety, but goes far beyond, to wisdom, transcendence and action for those defined as “other.”  Or “them.”  This is advocacy.

I asked Dr. Kelly Carlson, coauthor what she might feel is relevant for this blog, and she replied that if we apply analysis to what is being said in the Trump presidential campaign about the Muslim parents who have spoken out in opposition we will see the discourses underlying such comments, and their implications. We are in an era in which, for instance, crowds, or mobs yelling “lock her up” about Hillary Clinton is reaching a level of social “acceptability.”  Instability and globalization have now led to xenophobia and the migrations of millions brown people from diverse regions affected by extreme poverty, political persecution and terrorist attacks. In the US, White privilege is systemic, and we have seen biased decisions by police resulting in statistics that look like systematic execution of people of color. The War on Drugs resulted in mass incarceration of African Americans and Latino/as.  The privatization of many of our prison facilities means that services, and even administration is “outsourced” to corporations, for profit, and the labor of prisoners becomes part of an enterprise reminiscent of slavery.

As psychiatric nurses, Kelly and I are particularly concerned with the “non-state” of mental health care following closure of state hospitals. The private corporations who stepped into that gap have been found to be far less concerned with quality of care, and are inadequate to meet the needs. Thus many enter the health system in costly ways, such as through the ED.  They fall through the cracks, at taxpayer expense.  Kelly pointed to another example of the return of a “slavery” system in the network of human trafficking, now pervasive in the US. We need to see the many ways people are marginalized, and how that affects health.  We need to end health disparities.

Nurses can develop knowledge through the lens of marginalization, viewing the person in part as an emancipatory being, striving toward impacting their sociopolitical environment.  It is about exerting self-will, and group self will.  We challenge nurse scientists, and health related scholars to include marginalization, and the real-life contexts of our patients, whether we are providing hands-on care, or making policy decisions at the population level. We can use social media, and mainstream media more effectively to shape the public discourse about health, and to define it broadly to include issues of discrimination, stigmatization, violence and symbolic violence.

Emancipatory knowledge will always need updating, as it is so closely tied to structures and processes of the larger social, cultural and political environment. It requires a historicist perspective.  We invite dialogue on this article, and the issues and questions it raises for nursing.

Preview of upcoming issue – ANS 39:3


In a couple of weeks, the Fall issue of ANS, Vol 39 No 3 will be released!  This is our first issue that features articles on a wide range of topics, while maintaining the ANS tradition of articles that lead cutting-edge discourses on issues of critical importance for nursing and healthcare.  Here is a preview of the Table of Contents!

Marginalization: A revisitation with integration of scholarship on globalization, intersectionality, privilege, microaggressions and implicit biases
– Joanne M. Hall, PhD, RN, FAAN; Kelly Carlson, PhD, APRN-BC

Social Justice As a Lens for Understanding Workplace Mistreatment
– Christine Marie Moffa, MS; Joy Longo, PhD

Mixed Methods Research in the Discipline of Nursing
– Cheryl Tatano Beck, DNSc,CNM,FAAN; Lisa Harrison, MSN, PMHNP

Using Theory Integration to Explore Complex Health Problems
– Brenna Leda Quinn, PhD, RN, NCSN

A Framework of Complex Adaptive Systems: Parents As Partners in the NICU
– Amy L. D’Agata, PhD, MS, RN; Jacqueline McGrath, PhD, RN, FNAP, FAAN

Nurses’ knowledge about transgender patient care: A qualitative study
– Rebecca M Carabez, PhD, RN; Michele J. Eliason, Ph.D.; Marty Martinson, PhD

Teen Mothers’ experience of Intimate Partner Violence; a metasynthesis.
– Sarah Bekaert, MSc; Lee SmithBattle, PhD

Interpretation of Hospital Nurse Fatigue using Latent Profile Analysis
– Diane Ash Drake, Ph.D., R.N.; Linsey M. Barker Steege, PhD

Internet Recruitment of Asian American Breast Cancer Survivors
– Eun-Ok Im, PhD, MPH, RN, CNS, FAAN; Yaelim Lee, PhD; Xiaopeng Ji, MSN; Jingwen Zhang, MS; Sangmi Kim, MPH; Eunice Chee, BSE; Wonshik Chee, PhD; Hsiu-Min Tsai, PhD, FAAN; Masakazu Nishigaki, PhD; Seon Ae Yeo; Marilyn Shapira; Jun Mao, MD, MSCE

Development of Hermes, a new person-centered assessment tool in nursing rehabilitation, through action research
– Kristin Thorarinsdottir, RN, BScN, MScN; Kristen Bjornsdattir, RN, PhD; Kristjin Kristjinsson, PhD

Clinical Growth: An Evolutionary Concept Analysis
– Jessica Barkimer, MSN

Understanding Nursing Influence: Development of the Adams Influence Model using practice, research, and theory
– Jeffrey M Adams, PhD, RN, NEA-BC; Sudha Natarajan, PhD, RN

Nursing Leadership in East Africa


Our current featured article is title “An Exploratory Descriptive Study on Task Shifting in East Africa,” authored by Lori A. Spies, PhD, RN, NP-C.  In this article, Dr. Spies reports the findings of her study that explored the perceptions of nurse leaders in Ethiopia, Kenya, Tanzania, and Uganda who have taken on expanded roles through task shifting – an approach intended to compensate for the significant shortage of providers needed to address the healthcare needs of the populations in this region. While this article is featured you can download it at no cost, then return here and share your comments for discussion!  Dr. Spies shared this message about her work for ANS readers:

It is an honor and a pleasure to have my article featured in the ANS blog.  My interest in Africa began in 2005 after getting to know an African student with a compelling life story. Shortly thereafter I led a team of family nurse practitioner students for a month long trip to Uganda. The experience led to establishing an international clinical

Lori Spies

Lori Spies

elective for Baylor University students and to my awareness of the tremendous work being done by nurses in Sub-Saharan Africa. I observed nurses in Uganda called and expected to provide desperately needed care for which they were often not adequately prepared.  I became convinced that my biggest contribution to global health, apart from educating students, would be by supporting our global nursing colleagues through research and capacity-building endeavors.

Task shifting, i.e. taking on work typically be done by others, has been informally practiced for years and is a well-established tool to increase access to care. As I delved into the published task shifting literature it became clear to me that the research had almost exclusively focused on the increased number of patients being seen and the quality of care being provided. The nurses’ perspective was absent from the many published studies. The challenges and rewards of the frontline providers of health care were virtually ignored.  After a preliminary focus group study in Uganda, also on task shifting, I elected to conduct my dissertation study on the perspective of nurse leaders working in four countries where task shifting was practiced.

I found the insight and words of the nurse leaders fascinating and provocative. The richness of their insights and the commitment to provide good nursing care in challenging environment motivates me to continue research and efforts to support of nurses globally.

Spies women work

The great burden of work that woman assume is not only in the nursing profession but evident in myriad ways throughout sub-Saharan Africa.

Examining the meaning of “relationship power”


The latest ANS featured article is authored by Valerie Halstead, BSN; Joseph De Santis, PhD, ARNP, ACRN; Jessica Williams, PhD, MPH, APHN-BC, and is titled “Relationship Power in the Context of Heterosexual Intimate Relationships: A Conceptual Development.” The article is available to download at no cost while it is featured, and we welcome your comments in response!  Ms Halstead shared this information about this work:

It is a great pleasure to have our article featured on the ANS blog. The need for this article was identified while I was

Valerie Halstead

Valerie Halstead

enrolled in an epistemology class. Within this class we discussed the importance for concepts to be clearly defined to advance nursing knowledge, research, and theory development. Though this is the case, when reading literature focused on relationship power, inconsistencies were revealed in how this concept has been examined and defined. Because of this, a need for clarification of this concept was identified.

Therefore, with the guidance and collaboration from co-authors Dr. DeSantis and Dr. Williams, we are pleased to offer this conceptual development of relationship power in the context of heterosexual intimate relationships. We conducted a concept analysis on the basis of the guidelines

Jessica Williams

Jessica Williams

provided by Walker and Avant to assist in understanding this concept. As specified in this article, we propose the definition of relationship power to be the relative perceived, and actual ability to influence a relationship partner.

Many of the identified consequences of relationship power were found to have health care implications. Because of

Joseph De Santis

Joseph De Santis

this, it is extremely important for nurses in the clinical setting to be aware of what this concept entails. Doing so will help ensure they provide appropriate and comprehensive care to patients. Therefore, we hope that this article assists nurses with this. Furthermore, it is hoped that this article will assist nurse researchers in increasing consistency in their use of conceptual definitions and operational uses of relationship power. Doing so will allow for more directed future research in this particular area of science. We want to thank ANS for giving us the opportunity to share our developing work in this important area of nursing research.

Cultural Meanings of Mothering


Our current featured article describes a study that uses an intersectional approach to examine the simultaneous and cumulatie effects of gender, race and class.  The article, byDebora M. Dole, PhD, CNM; Donna Shambley-Ebron, PhD, RN, CTN-A, is titled “Cultural Meanings of Mothering Through the Eyes of African American Adolescent Mothers.”  Please visit the ANS website to download your copy of this important article at no coast while it is featured, then return here to share your responses and ideas!  Here is a message from Dr. Dole about her work in this area:

It is an honor to have this article featured in the Advances in Nursing Science blog.  I am thankful for the opportunity to share the work that has opened my own eyes in ways I was not prepared for. This article

Debora Dole

Debora Dole

represents a critical reflection as a researcher and practicing midwife of what inner strength, empowerment, humility and support looks like through the eyes of young African American mothers.  The use of Photovoice as a method to explore cultural meanings from the inside out invited critique and deconstruction of presupposed ideas of what mothering looked like, how it was perceived internally and externally, and how it was ultimately constructed by the mothers themselves.  Photovoice, a method using photography to represent and interpret the daily lives and concerns of participants, gives “voice” in a way that ethnography or qualitative inquiry alone could not provide.

As an experienced practitioner but a novice researcher, I struggled with how to explore the concept of cultural mothering from a perspective I had never experienced.  I am white, middle-aged, middle-class and live in a rural suburb.  While my clinical practice has been primarily in service of young, urban African American women, my experience did not provide the lens I felt was necessary to truly understand. The development of a theoretical framework representing the methodology as well as interpretation of study findings was necessary to understand more deeply the question, “What does mothering look like through the eyes of African American adolescent mothers?”

Intersectional Theoretical Framework

The theoretical framework for this study provided support for exploring mothering through the intersectional lens of gender, race and class.  It was important for my own understanding to have a framework that represented the process of deconstructing each of these.  No one theory alone seemed to fit.  Critical feminist, race and social theories represented the intersectional trifecta of being female, Black and poor.  It was my belief that mothering from what I viewed as a disadvantaged position would prove to be difficult in such a fragmented environment.

The interpretative nature of the study required a cultural lens constructed using concepts of Black Feminist Thought, Womanism, and Africana Womanism to bring meaning to the themes of building a network, sharing responsibilities, and seeing the future. Participant photography was accomplished in response to prompts such as: 1) What does mothering look like to you? 2) Who or what are the things that help you be a mother? 3) What makes it hard to be a mother? 4) What motivates you as a mother? 5) What does the future look like?   The cornerprocess of participant photography, discussion and analysis provided unique insight into a complex network of extended family, “other mothers”, friends and kin constantly under construction.  The power of a simple photograph cannot be overstated.   The photograph to the right is titled “Backed into a Corner”.  The photograph was taken and presented to the group for discussion by a participant who expressed her feeling of being trapped with few options.  It was through group discussion among the participants that the window represented a way out.

If the purpose of research is to uncover, explain or understand phenomena, the unexpected insight gained through this process has accomplished more than that.  This process has changed me.  It has made me a better midwife, a better researcher, a better learner, a better teacher and a better person.  I have a group of young, inexperienced, and “disadvantaged” mothers to thank for showing me what lies beneath the surface.  I hope you enjoy the article.  Maybe it will provide the reader another perspective.  Take a step back and “see”.  The clinical application of this research can be realized in how those that care for mothers and their children see their role, the power relationships that exist in healthcare and ultimately change how care is delivered.  The change has begun with the development and expansion of models of care that put mothers and their families at the center of their care such as CenteringPregnancy and CenteringParenting ®.

I would like to thank my co-author, Dr. Donna Shambley-Ebron for guiding me, sharing her wisdom, her insight and showing me the value of dwelling with the data.

Cultural safety and competence in addressing structural inequities


The article titled “Aboriginal Women’s Experiences With Gestational Diabetes Mellitus: A Participatory Study With Mi’kmaq Women in Canada” is now featured on the ANS website.  In this article the authors, Joanne Whitty-Rogers, PhD, RN; Vera Caine, PhD, RN and Brenda Cameron, PhD, RN, explore and gain insight into the experiences of Mi’kmaq women with gestational diabetes mellitus in 2 First Nations communities in Nova Scotia. You can download the article at no charge while it is featured, and we encourage you to return here to share your comments!  Dr. Whitty-Rogers shared this message for ANS readers:

This research arose from my experience working as a non-Aboriginal Registered Nurse with Aboriginal women and families in maternal child nursing as a new nurse in a the Neonatal Intensive Care Unit. It was at this time in my nursing career that I began to care for many Mi’kmaq babies and mothers.  My encounters with the parents were frequent, yet I felt a sense of distance between them and myself and did not understand why.  Although I

Joanne Whitty-Rogers

Joanne Whitty-Rogers

tried to communicate in a caring and professional manner, I felt that my knowledge, skills, and understanding of how to communicate effectively with Mi’kmaq mothers and families were not meeting their needs.  This lack of effective communication created frustration for me and I believe was the reason why some Mi’kmaq women would not attempt to engage in any dialogue and would limit their time visiting their babies in the Neonatal Intensive Care Unit.  Looking back, I realize I was experiencing disembodiment because I was unable to verbally communicate in a way that the women could understand.

As the years went by, and I continued to study and do research as part of my Masters and PhD in nursing, I knew I needed to explore more about the experiences of Aboriginal women and families in the area of Perinatal nursing. I believe that build a trusting and collaborative relationship with the women was going to be critical in working together. At the time,   gestational diabetes mellitus was and continues to be a serious and prevalent health problem for Aboriginal

Vera Caine

Vera Caine

women. I wanted to gain a better understanding of their experiences and glean ways to help them improve their health outcomes.

Fortunately, I met Dr. Brenda Cameron and Dr. Vera Caine who both agreed to be co-supervisors for my PhD study. They were both researching in Aboriginal women’s health and understood the barriers to receiving access to equitable healthcare.  We have had very rich conversations about ways to improve Aboriginal women’s help which has been beneficial in the work we do with Aboriginal people.

Despite educated health care providers and extensive research in health care, Aboriginal women continue to experience discrimination, and marginalization in healthcare settings across Canada.  Recognizing racism and

Brenda Cameron

Brenda Cameron

injustices embedded in life experiences can provide a beginning point for the health care system to respond in a way that is culturally competent, caring, and humane.

Our nursing education has helped us to develop an understanding of diversity, inclusivity, and to be more pro-active and responsive to the changing health care needs of society. We believe that sharing this research with nurses and other health care providers will help them gain more knowledge into the importance of providing more culturally competent and culturally safe health care.

 

 

Promoting Health for Hispanic Women


The current featured ANS artice addresses the challenge of cultural diversity and understanding cultural factors that influence health.  This article, titled “Evaluation of 3 Behavioral Theories for Application in Health Promotion Strategies for Hispanic Women” by Daisy S. Garcia, PhD, MSN, examines these complex issues.  The article is available to download at no cost while it is featured on the ANS website, and we invite you to read this article and return here to share your comments!  Here is

Daisy Garcia

Daisy Garcia

Dr. Garcia’s message for ANS readers about her work:

I want to thank ANS for giving me the opportunity to share this article with its readers—particularly with those who work in finding ways to enhance the health of Hispanic/Latino women living in the Unites States.

Behavior modification is key for a healthy life, free of diseases. This task can be difficult to achieve in diverse populations such as Hispanic women. There are a variety of ways in which this group of women differs. For example, independent of the number of years that Hispanic women have lived in the U.S., some women maintain strong cultural believes, while others easily acculturate and adopt new behaviors to function effectively in different environments. The obstacles that Hispanic women need to overcome to access health care are additional factors that may limit health practitioners’ ability to reach these women in order to educate and inform them about practicing healthy behaviors. Health education through health promotion programs are instruments that can successfully achieve health-enhancing behavioral change—specifically, those programs designed using a theoretical framework that suggests ways to attain positive behavior change.    

My experience working with Hispanic women and my background as an educator led me to look into health promotion strategies addressing Hispanic women as well as to identify the theories guiding these strategies so that I could incorporate them into my teachings. Through this quest, I found that information on the selection of theories suitable for developing a health strategy catering to the diverse population of Hispanic women was scarce. In this article, I analytically evaluate two of the most common behavioral theories in health promotion and a nursing theory in the context of access to U.S. health care by Hispanic women. This evaluation is completed using a practical instrument, as the purpose of this article is also to offer readers an example of theory evaluation with a less complex, yet complete and reliable theory evaluation instrument to fit health promotion strategies.

Decolonizing Health Research on Female Genital Cutting


The current ANS featured article addresses a social/cultural and health issue that has engaged intense discussion in many circles for a number of years – the issue of genital cutting.  The article is titled “A Decolonizing Methodology for Health Research on Female Genital Cutting,” authored by Jane Werunga, MSN, RN; Sheryl Reimer-Kirkham, PhD, RN and Carol Ewashen, PhD, RN, and it is available for free download on the ANS website while it is featured. We invite you to download your copy of this article and return here to participate in discussion of ideas and issues addressed here.

Ms. Werunga shared this message about her work:

It is an immense pleasure to have our article featured on the ANS blog. The idea for this article was conceived from a course on critical perspectives in nursing and health care that I took under the guidance of Dr. Sheryl

Jane Werunga

Reimer-Kirkham in my quest to understand alternative methodologies for researching marginalized populations. Coming from a non-research background, I had very little knowledge on the multiple theories and methodologies that guide contemporary health research, but I understood that a fitting methodology would need to be sufficient enough to cover the complexity of the topic that I was proposing, which was research on African immigrant and refugee women and girls who have experienced female genital cutting (FGC).

Immigrants occupy unique cultural and spatial locations where they are constantly having to negotiate new ways of doing and being while adapting to new identities which for most, are marginalized and “marked” by historical, cultural, political, and migratory forces. The worldwide controversy surrounding the practice of FGC further compounds issues for affected women and girls living in Western locales particularly with regards to their health and wellbeing. I believe that nursing research on immigrants should reflect this conflation of experiences in order to fully lay bare the

Sheryl Reimer-Kirkham

Sheryl Reimer-Kirkham

socio-political and cultural structures that inform their health and health seeking behaviors. When I embarked on my doctoral research on FGC, I quickly realized that I could not locate this study within mainstream methodologies given the complexity of the issues therein. I needed a multifactorial approach that could fully capture the many forces at play. Critical decolonizing perspectives offer this alternative, and this article is an initial attempt to curve out an innovative methodology that combines several critical perspectives including African feminism, in an effort to reconceptualize FGC research in a new cultural dispensation. Critical perspectives disrupt commonplace pathologizing, criminalizing, and demonizing discourses, as reflected in the shift in language from “female genital mutilation” to “female genital cutting”.

This article reflects my doctoral work-in-progress; PhD supervisors and co-authors, Dr. Ewashen and Dr. Reimer-Kirkham, remain instrumental in the conceptualization of this methodology as I move into the fieldwork phase of my research. Dr. Ewashen’s knowledge on body politics, critical feminist, and poststructural research

(http://nursing.ucalgary.ca/nursing_info/profiles/carol-ewashen) and Dr. Reimer-Kirkham’s vast experience in

Carol Ewashen

Carol Ewashen

the areas of culture, equity, and health (http://twu.ca/directory/faculty/sheryl-reimer-kirkham.html) will no doubt be invaluable as I map out a rigorous and scientifically valid method that reflects the complexities of the experiences of affected women and girls. The endpoint of my research is the provision of socially just, relevant, timely, and equitable nursing and other health care services to marginalized populations.

We appreciate the opportunity to share our developing ideas in this area of nursing research.

 

 

Examining Environmental Exposure and Birth Outcomes


The article titled “Mechanisms of the Maternal Exposome and Implications for Health Outcomes” is now featured on the ANS website.  In this article the authors, Michelle L. Wright, PhD, RN; Angela R. Starkweather, PhD, ACNP-BC, CNRN and Timothy P. York, PhD examine environmental exposures in women that may effect the health of their offspring.  Dr. Wright shared this message for ANS readers:

Wright

Michelle Wright

My mentors, Drs. Starkweather and York, and I are thrilled to have our manuscript featured on the ANS blog. This paper was a labor of love and I hope it will come to motivate nurses to reconsider how we evaluate our environment and genomic signature related to health.  The information presented in this manuscript are foundational to the program of research I have been building and will likely become commonplace within healthcare as the initiative for precision medicine marches forward.

Have you ever wondered why some people who seem to be living a healthy lifestyle become gravely ill and others are perfectly healthy against all odds? Of course, some of it is genetic but many times there is no identifiable genetic cause for an illness. Our bodies have the fascinating ability to respond to, and are sometimes changed by, environmental exposures. Perhaps more mind-boggling, is that some of these changes can be potentially passed from one generation to the next that are not the genetic sequence. Basic laboratory research in the areas described in this paper (i.e., DNA methylation, telomeres, microbiome, HPA-axis) continuously offer up new perspectives, facts and theories on how variations contribute

Angela Starkweather

Angela Starkweather

to health and disease.

My background is in basic science, my first job out of college was as a groundwater remediation scientist. I worked on projects removing toxicants from the ground to keep drinking water safe. Although, I loved the work and it was meaningful; I wanted to more directly advocate for, protect, and help improve the health of other and became a nurse. After working in the neonatal intensive care unit and emergency departments, I was still bothered by the same question I started this blog with and returned to school to see if I could do some research to get more answers. Given my background, I’ve always been interested in focusing on how the environment influences health, particularly that of women and children. I became interested in this particular population because due to the historical exclusion of women from clinical research, there are many questions to be answered.

The purpose of this paper is to encourage nurse scientists to think of health research with women and children

Timothy York

Timothy York

through a different lens – one that brings together multiple environmental exposures across the lifespan and considers how those exposures get under our skin to influence health outcomes.

Some additional references of how Omics can be applied in Nursing Research for the interested reader:

Wright, ML., Starkweather, AR. (2015). Antenatal Microbiome: Potential Contributor to Fetal Programming and Establishment of the Microbiome in Offspring. Nursing, 64(4), 306-319. DOI: 10.1097/NNR.0000000000000101

Wright ML, Dozmorov MG, Wolen, A, Jackson-Cook, C, Starkweather AR, Lyon DE, York, TP. (2016). Establishing an analytic pipeline for genome-wide DNA methylation. Clinical Epigenetics. 8(1). 45. doi: 10.1186/s13148-016-0212-7

Wright ML, Housman, D., & Taylor, J. Y. (2016). A perspective for sequencing familial hypercholesterolaemia in African Americans. Npj Genomic Medicine, 1(April), 16012. doi:10.1038/npjgenmed.2016.12

Taylor, JY, Wright, ML, Crusto, CA, Sun, Y. (2016). The Intergenerational Impact of Genetic and Psychological Factors on Blood Pressure Study (InterGEN): Design and Methods for Complex DNA Analysis. Biological Research for Nursing (in press) PMID: 27118148

Wright, ML, Ralph, JL, Ohm, JE, Anderson, C. M. (2013) DNA Methylation in Complex Disease: Applications in Nursing Research, Practice, and Policy. Nursing Outlook, 61, 235-241. http://dx.doi.org/10.1016/j.outlook.2013.04.010

Dahlen, HG., Kennedy. HP., Anderson, CM., Bell, AF., Clark, A., Foureur, M., Ohm, JE., Shearman, AM., Taylor, JY., Wright, ML., & Downe, S. (2013). The EPIIC hypothesis: Intrapartum effects on the neonatal epigenome and consequent health outcomes. Medical Hypotheses 80(5), 656-662. doi:10.1016/j.mehy.2013.01.017

Understanding the Experience of HIV-Positive Pregnant Immigrant Women


Featured now and available for download – “The Lived Experience of Pregnancy Among HIV-Positive Refugee Women: A Qualitative Study” by Teresa Chulach, PhD, RN, NP; Marilou Gagnon, PhD, RN and Dave Holmes, PhD, RN.  In this article the authors discuss themes from their phenomenological analysis which they belief can lead to culturally competent and culturally safe care. Dr. Chulach provided this background on their work:

After several decades of practice as both a nurse and nurse practitioner, the importance of understanding the lived experience in clients’ care is more apparent than ever. Such knowledge is essential if we are to assist clients

Teresa Chulach

Teresa Chulach

in confronting the challenges they encounter in addressing their health and social issues.

As a nurse practitioner working within a tertiary care immunology setting, I became unsettled by the health care systems seemingly inability to address the needs of HIV-positive refugee pregnant women and was further disturbed when I witnessed women dropping out of care completely.  As a graduate student at that time (Masters in Nursing) I attempted to gain further understanding of this phenomenon in development of my qualitative research proposal.  The proposal development spurred my interest inspiring me to go on and complete the research study in Doctoral education.  With the expert guidance of Dr. Marilou Gagnon, as a thesis supervisor and an esteemed thesis committee (Dr. Dave Holmes, Dr. Denise Moreau, Dr. Wendy Peterson) I embarked on a journey of discovery that shed light on the many influences that shaped the experience of pregnancy for HIV-positive refugee women in their new Canadian context.

Dave Holmes and Marilou Gagnon

Dave Holmes and Marilou Gagnon

This article presents the findings of the thesis project. The findings illuminate how pregnant HIV-positive refugee often find themselves situated within a liminal reality—a ‘in-between’ space that situates them neither there (country of origin) nor here (their host society of Canada). This liminal reality has implications for their health at the identity level (micro) the social level (meso) and is affected by macro-level policies. Yet, it is a space that also offers the possibility of transformation and the hope for something “new” to develop. We invite you to explore the experience of HIV-positive pregnant refugee women in this liminal reality. While this study is situated in the Canadian context we believe that it provides insight for other contexts as global migration and displacement continue to be predominant features of today’s society.